Well...

Reading my last post makes me realize how fast time has flown by... wow its April. The Easter Bunny soon will be coming by. Things are pretty much the same around here...with the exception of ....

I need to put the dots because its more like same story different day (such is life right). Ty is not on meds. I think he slept all day for the first two-three weeks and then was a mess. A Complete mess. The meds only lasted for 4 hours so he was knocked out, wide awake going crazy, knocked out and then waking at 4 am to start the day. So... we made a decision to go back to the basics.

First things first, he is on a casein free diet. This is helping a little - we are almost at week 3. I am slow to do the gluten also, but slowly I am eliminating it as well. The other kids like the coconut milk. Ty is only drinking water. But, we are getting a colored container to conceal milk for PJ and Ant. They are cool with the different milk taste tests.. I should post a future blog on that..

Next, the chair is hopefully coming. We have borrowed one for the weekend so I will take a pic. It really does work. He is testing of time outs and I have to hold him there- Still... (sigh). The only positive is that my arms are getting a great workout. But, the chair restrains him and prevents him from kicking, flipping the chair,etc. Over Christmas we used it and in 3 weeks he sat 3 times.. It was very nice- Its just they are expensive. He did sit in it for play time/mommy therapy with me too which is a plus.

Finally, we are going back to square one. Are we missing something? There is just too many unknowns... he has a new cafe au lait spot, he rubbs his eyes, he is super sensitive when outside, he stares off and other sensory complexities. We are headed to a new neurologist (we used our Tricare 2nd opinion), allergist (New), immunologist (New), etc.... just to name a few or I pray a place with a team... we are waiting a phone call from his PCM either today or tomorrow .

Its a waiting game- AGAIN. There just is too much that does not make sense. I am trying to focus on the fact that he is more like a two year old....but whats bad is that he has been like this for two years. I think I am just tired of the twos...

Some other new things we are trying is getting on a strict schedule, vitamins and picture activities. I use to keep a diary every time the behaviors were bad, but now its everyday. I don't know if it will help now, but maybe in the long run. The picture book is a lot of work to put together, but we are just working with one activity right now to keep busy (number puzzle).

So... positives-- he is back to his normal bedtime routine now. He gets to bed with bed, bath and book (if we did not read earlier). Mostly hes out in a few minutes when I say goodnight to PJ and Ant. We survived a breakfast at Cracker Barrell, we survived the zoo twice (barely), we made it at the acquariam and he rollerskated. He also does great with - haircuts, taking the trash out, emptying the washer and putting the wet in the dryer... to name a few. Plus, he's still the cutest red head I know.