Recently I haved joined two chromosome organizations which have helped in networking with people whose kiddos have rare chromosome abnormalities. While there is no perfect match for Ty, there are some very similar characteristics for other kids that are also missing pieces or have microdeletions.
Behavior has been the biggest hurdle. The lack of his speech is definitly making it harder for him to communicate and him understanding us. Recently, we brought pictures that are all about feelings. Only a few as he gets overwhelmed by too much. I have also gone back to trying to keep a diary on him.. I put what he eats, mark advances and put behavior that is good and bad.
So, speaking of his diet... well the nitrate thing. I am not a hot dog person and I rarely buy them. But, we love turkey bacon and turkey sausage. Nitrates are of course a main component. So, for now I will not buy turkey bacon.. until I can sort through all the internet info and research. I do see how his behavior is worse after eating the bacon and all processed meats. Is anything good for us these days? Where is the how to make your own bacon manual?
